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  Max Robbin Memorial Lecture
and Teaching Day 2014

Friday, May 23, 2014

   This year we were fortunate to have Amy Verstappen, as our speaker. Amy was President and CEO of the Adult Congenital Heart Association (ACHA). Amy told us how she started and led ACHA for 18 years, describing the ACHA mission, and the many ways it benefits those living with congenital heart disease.

Here are some highlights of the day:

Amy lecture was entitled "How to find and what to look for in an ACHD Center of Excellence". She discussed the programs, faculty, and services that an ACHD Center of Excellence should offer, and what primary physicians should look for when choosing an ACHD program for their patients. She shared her experience of living with congenital heart disease. Both pediatric and adult cardiology fellows and faculty attended, as well as parents of teens and young adults with congenital heart disease.

Patient Panel
This panel, moderated by Amy Verstappen, consisted of five expert cardiologists and three patients (including Amy herself) who live with congenital heart disease, focusing on the different perspectives of doctor and patient. The various challenges faced by patients in their daily lives, their methods for finding life balance, the advice they might offer others with similar difficulties - these were some of the topics discussed. Building relationships with caregivers and medical professionals were also a heart-felt subject for both groups.

On the panel, from the left were: Jonathan N. Ginns, M.D., Adult Congenital Heart Disease and Assistant Professor of Clinical Medicine, Division of Pediatric Cardiology, patient Bethany Sigley, and Harsimran Sachdeva Singh, M.D., Interventional Cardiology, New York- Presbyterian / Weill Cornell.

Continuing from the left are patient Agha Khan, Marlon S. Rosenbaum, MD, Director of Adult Congenital Heart Disease, and our speaker Amy Verstappen.

Amy again, Erika Berman Rosenzweig, MD, Medical Director of The Pulmonary Hypertension Comprehensive Care Center, and Robert J. Sommer, MD, Director, Invasive Adult Congenital Heart Disease and Director, Invasive Structural Interventions.

Julie Vincent, MD, Chief, Pediatric Cardiology, summed up our wonderful day.

The Max Robbin Fund for Adult Congenital Heart Disease.  Columbia University Medical Center